The Eunice Kennedy Shriver Center at UMass Medical School has a rich history of supporting research, education, and service aimed at improving the quality of life for persons with intellectual and developmental disabilities (IDD) and their families. This collection showcases journal articles and other publications and presentations written by faculty and researchers at the Eunice Kennedy Shriver Center.

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Publications from 2020

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Supporting Family Members of Youth in Mental Health Crisis, Joshua Feriante, Maite Cintron, Ariella Shayani, Brian Denietolis, Emily Lauer, David M. Cochran, Yael Dvir, and Emily Rubin

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Impact of Selective Eating on Social Domains Among Transition-Age Youth with Autism Spectrum Disorder: A Qualitative Study, Sara C. Folta, Carol Curtin, Aviva Must, Annie Pehrson, Katelyn Ryan, and Linda G. Bandini

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A framework for assessing the impact of chemical exposures on neurodevelopment in ECHO: Opportunities and challenges, Susan L. Schantz, Brenda Eskenazi, Jessie P. Buckley, Joseph M. Braun, Jenna N. Sprowles, Deborah H. Bennett, Jose Cordero, Jean A. Frazier, Johnnye Lewis, Irva Hertz-Picciotto, Kristen Lyall, Sara S. Nozadi, Sharon Sagiv, AnneMarie Stroustrup, Heather E. Volk, and Deborah J. Watkins

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Developmental-Behavioral Pediatricians' Diagnosis and Coding of Overweight and Obesity in Children with Autism Spectrum Disorder, Morgan Walls, Carol Curtin, Sarah Phillips, Misha Eliasziw, Carissa Jackel, Aviva Must, Linda G. Bandini, and Sarabeth Broder-Fingert

Publications from 2019

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Food selectivity in a diverse sample of young children with and without intellectual disabilities, Linda G. Bandini, Carol Curtin, Misha Eliasziw, Sarah Phillips, Laura Jay, Melissa C. T. Maslin, and Aviva Must

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Early life antecedents of positive child health among 10-year-old children born extremely preterm, Jacqueline T. Bangma, Evan Kwiatkowski, Matt Psioda, Hudson P. Santos Jr, Stephen R. Hooper, Laurie Douglass, Robert M. Joseph, Jean A. Frazier, Karl C.K. Kuban, Thomas M. O'Shea, and Rebecca C. Fry

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Risk of disordered eating at the intersection of gender and racial/ethnic identity among U.S. high school students, Ariel Beccia, Jonggyu Baek, William M. Jesdale, S. Bryn Austin, Sarah N. Forrester, Carol Curtin, and Kate L. Lapane

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Investigating Potential Biomarkers in Autism Spectrum Disorder, Carolyn Bridgemohan, David E. Cochran, Andrew W. Zimmerman, Roula N. Choueiri, and Jean A. Frazier

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Nurses' attitudes and emotions toward caring for adults with intellectual disabilities: Results of a cross-sectional, correlational-predictive research study, Melissa L. Desroches, Kristen A. Sethares, Carol Curtin, and Joohyun Chung

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Lithium for the Maintenance Treatment of Bipolar I Disorder: A Double-Blind, Placebo-Controlled Discontinuation Study, Robert L. Findling and Jean A. Frazier

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Alpha band signatures of social synchrony, Paula Fitzpatrick, Teresa V. Mitchell, R. C. Schmidt, David N. Kennedy, and Jean A. Frazier

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DataCite Implementations at the University of Massachusetts: Presentation for the DataCite General Assembly, Tess Grynoch, Erin Jerome, Christian Haselgrove, and Lisa A. Palmer

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The SOFIA Study: Negative Multi-center Study of Low Dose Fluoxetine on Repetitive Behaviors in Children and Adolescents with Autistic Disorder, Paul Herscu, Benjamin L. Handen, and Jean A. Frazier

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Addressing a Gap in Healthcare Access for Transition-Age Youth with Autism: A Pilot Educational Intervention for Family Nurse Practitioner Students, Dorothea Iannuzzi, Patricia Rissmiller, Susan M. Duty, Susan Feeney, Maura Sullivan, and Carol Curtin

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New Therapeutic Options for Fragile X Syndrome, Isha Jalnapurkar, David M. Cochran, and Jean A. Frazier

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Everything Matters: The ReproNim Perspective on Reproducible Neuroimaging, David N. Kennedy, Julianna F. Bates, Christian Haselgrove, and Steven M. Hodge

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Association of Circulating Proinflammatory and Anti-inflammatory Protein Biomarkers in Extremely Preterm Born Children with Subsequent Brain Magnetic Resonance Imaging Volumes and Cognitive Function at Age 10 Years, Karl C. K. Kuban, Jean A. Frazier, and David E. Cochran

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An Observational Study With the Janssen Autism Knowledge Engine (JAKE((R))) in Individuals With Autism Spectrum Disorder, Seth L. Ness and Jean A. Frazier

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Introduction to the special issue on reproducibility in neuroimaging, Russell A. Poldrack, Kirstie Whitaker, and David N. Kennedy

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Oligogenic Effects of 16p11.2 Copy-Number Variation on Craniofacial Development, Yuqi Qiu, Curtis K. Deutsch, and Jonathan Sebat

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Accessibility and IoT / Smart and Connected Communities, John Rochford

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Optimizing Learner Accessibility: Adding American Sign Language (ASL) and Text-to-Speech to Online Trainings, Sarah Rulnick, John Rochford, Derek Chaves, Benjamin Amankwata, Viet Do, and Mabelys Rodriguez

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Epigenome-wide DNA methylation in placentas from preterm infants: association with maternal socioeconomic status, Hudson P. Santos Jr., Arjun Bhattacharya, Elizabeth M. Martin, Kezia Addo, Matt Psioda, Lisa Smeester, Robert M. Joseph, Stephen R. Hooper, Jean A. Frazier, Karl C. Kuban, T Michael. O'Shea, and Rebecca C. Fry

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Does physical activity differ between youth with and without intellectual disabilities, Heidi I. Stanish, Carol Curtin, Aviva Must, Sarah Phillips, Melissa C. T. Maslin, and Linda G. Bandini

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Parental concern regarding obesity in children with autism spectrum disorder in the United States: National Survey of Children's Health 2016, David J. Tybor, Misha Eliasziw, Tanja V. E. Kral, Mary Segal, Nancy E. Sherwood, Linmarie Sikich, Heidi I. Stanish, Linda G. Bandini, Carol Curtin, and Aviva Must

Publications from 2018

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Sensory Sensitivity and Food Selectivity in Children with Autism Spectrum Disorder, Liem T. Chistol, Linda G. Bandini, Aviva Must, Sarah Phillips, Sharon A. Cermak, and Carol Curtin

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Pathways to Friendship - Building Friendships One Person at a Time: An innovative two-year project to expand and improve the inclusion of people with IDD, Christine J. Clifford and Jim Ross

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Adults With Childhood-Onset Schizophrenia and Their Siblings: Do Age of Onset and Familiality Affect Performance on and the Neural Signature of Working Memory Tasks, Jean A. Frazier

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Algorithmic analysis of relational learning processes in instructional technology: Some implications for basic, translational, and applied research, William J. McIlvane, Joanne B. Kledaras, Christophe J. Gerard, Lorin Wilde, and David A. Smelson

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The Sibling Support Demonstration Project: A Pilot Study Assessing Feasibility, Preliminary Effectiveness, and Participant Satisfaction, Emily Rubin, Louis Ostrowsky, Elizabeth Janopaul-Naylor, Priya Sehgal, Shireen Cama, Emilie Tanski, and Carol Curtin

Publications from 2017

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Changes in Food Selectivity in Children with Autism Spectrum Disorder, Linda G. Bandini, Carol Curtin, Sarah Phillips, Sarah E. Anderson, Melissa C. T. Maslin, and Aviva Must

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A Structured Approach Using the Systematic Review Data Repository (SRDR): Building the Evidence for Oral Health Interventions in the Population With Intellectual and Developmental Disability, Alexandra Bonardi, Christine J Clifford, and Nira Hadar

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Massachusetts Innovative Action to Support those Aging with an Intellectual or Developmental Disability (IDD), Laney Bruner-Canhoto, Sharon Oxx, Christine J. Clifford, and Emily Lauer

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Automatic Text Simplification for People with Intellectual Disabilities, Ping Chen, John Rochford, David N. Kennedy, Soussan Djamasbi, Peter Fay, and Will Scott

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The Effect of Age on the Prevalence of Obesity among US Youth with Autism Spectrum Disorder, Aviva Must, Misha Eliasziw, Sarah M. Phillips, Carol Curtin, Tanja V. E. Kral, Mary Segal, Nancy E. Sherwood, Linmarie Sikich, Heidi I. Stanish, and Linda G. Bandini

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Text Simplification and Pupillometry: An Exploratory Study, John Rochford, Mina Shojaeizadeh, Soussan Djamasbi, and Ping Chen

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Task Condition and Pupillometry, Mina Shojaeizadeh, Worcester Polytechnic Institute, John Rochford, and Ping Chen

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Physical Activity Levels, Frequency, and Type Among Adolescents with and Without Autism Spectrum Disorder, Heidi I. Stanish, Carol Curtin, Aviva Must, Sarah Phillips, Melissa C. T. Maslin, and Linda G. Bandini

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A Novel Weight-Loss Tool Designed for Adolescents with Intellectual Disabilities, Maresa Weems, Laura Truex, Renee Scampini, Richard K. Fleming, Carol Curtin, and Linda G. Bandini

Publications from 2016

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Making Your Webinar Accessible, Angie Aguirre

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Expanding Horizons: A Pilot Mentoring Program Linking College/Graduate Students and Teens With ASD, Carol Curtin, Kristin Humphrey, Kaela Vronsky, Kathryn Mattern, Susan Nicastro, and Ellen C. Perrin

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Text Simplification and Generation Y: An Eye Tracking Study, Soussan Djamasbi, Ping Chen, Mina Shojaeizadeh, and John Rochford

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Text Simplification and User Experience, Soussan Djamasbi, John Rochford, Abigail DaBoll-Lavoie, Tyler Greff, Jennifer Lally, and Kayla McAvoy

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Moving Beyond Google Translate: What Massachusetts Families from Diverse Cultures Need for Effective Autism Services and Supports, Courtney Dutra, Elaine Gabovitch, Emily Lauer, Rosalie Jiang, and Julie Whyte

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Data Citation in Neuroimaging: Proposed Best Practices for Data Identification and Attribution, Leah B. Honor, Christian Haselgrove, Jean A. Frazier, and David N. Kennedy

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Using Plain Language in Evaluation, Emily Lauer and Courtney Dutra

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Intellectual disability is associated with increased risk for obesity in a nationally representative sample of U.S. children, Mary Segal, Misha Eliasziw, Sarah Phillips, Linda Bandini, Carol Curtin, Tanja V.E. Kral, Nancy E. Sherwood, Lin Sikich, Heidi I. Stanish, and Aviva Must

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Text Simplification Using Neural Machine Translation, Tong Wang, Ping Chen, John Rochford, and Jipeng Qiang

Publications from 2015

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Stimulus control in a go/no-go procedure with compound stimuli with pigeons, Heloisa Cursi Campos, Paula Debert, Karen M. Lionello-DeNolf, and William J. McIlvane

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Interventions to Improve Access and Health Behaviors in Individuals with Intellectual and Developmental Disability: A National Resource for Oral Health, Christine J. Clifford, Alexandra Bonardi, and Cindy K. Fleming

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A Systematic Review of Oral Health Interventions to Reduce Disparities in Adults with Intellectual Disability: Results of a Novel Approach, Christine J. Clifford, Alexandra Bonardi, and Matthew Holder

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Educating Dental Health Professionals about People with Intellectual and Developmental Disabilities, Christine J. Clifford, Alexandra Bonardi, and Matthew Holder

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Including Youth with Intellectual Disabilities in Health Promotion Research: Development and Reliability of a Structured Interview to Assess the Correlates of Physical Activity among Youth, Carol Curtin, Linda G. Bandini, Aviva Must, Sarah Phillips, Melissa C. T. Maslin, Charmaine B. Lo, James Gleason, Richard K. Fleming, and Heidi I. Stanish

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Food Selectivity, Mealtime Behavior Problems, Spousal Stress, and Family Food Choices in Children with and without Autism Spectrum Disorder, Carol Curtin, Kristie Hubbard, S. E. Anderson, Eric O. Mick, Aviva Must, and Linda G. Bandini

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Discrimination and Reversal Learning by Toddlers Aged 15-23 Months, Naiara Minto de Sousa, Maria Stella Coutinho de Alcantara Gil, and William J. McIlvane

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Quantitative Measures of Craniofacial Dysmorphology in a Family Study of Schizophrenia and Bipolar Illness, Curtis K. Deutsch, Deborah L. Levy, Selya F.R. Price, J Alexander Bodkin, Lenore Boling, Michael J. Coleman, Fred Johnson, Jan Lerbinger, Steven Matthysse, and Philip S. Holzman

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The Healthy People 2020 Roadmap for Massachusetts Children & Youth with ASD/DD: Understanding Needs and Measuring Outcomes, Elaine Gabovitch, Courtney Dutra, and Emily Lauer

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"Look who's talking!" Gaze Patterns for Implicit and Explicit Audio-Visual Speech Synchrony Detection in Children With High-Functioning Autism, Ruth B. Grossman, Erin Steinhart, Teresa V. Mitchell, and William J. McIlvane

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p53 protects against genome instability following centriole duplication failure, Bramwell G. Lambrus, Yumi Uetake, Kevin M. Clutario, Vikas Daggubati, Michael Snyder, Greenfield Sluder, and Andrew J. Holland

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Barriers to Physical Activity in Children With Autism Spectrum Disorders: Relationship to Physical Activity and Screen Time, Aviva Must, Sarah Phillips, Carol Curtin, and Linda G. Bandini

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Pregnancy Outcomes Among U.S. Women With Intellectual and Developmental Disabilities, Susan L. Parish, Monika Mitra, Esther Son, Alexandra Bonardi, Paul T. Swoboda, and Leah Igdalsky

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Functional analysis of problem behavior: A systematic approach for identifying idiosyncratic variables, Eileen M. Roscoe, Kevin J. Schlichenmeyer, and William V. Dube

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Stimulus Fading and Response Elaboration in Differential Reinforcement for Alternative Behavior, Kevin J. Schlichenmeyer, William V. Dube, and Mariela Vargas-Irwin

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Innovations in Behavioral Intervention Preparation for Paraprofessionals Working with Children with Autism Spectrum Disorder, Richard W. Serna, Harold E. Lobo, Cindy K. Fleming, Carol Curtin, Michelle M. Foran, and Charles D. Hamad

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Enjoyment, Barriers, and Beliefs About Physical Activity in Adolescents With and Without Autism Spectrum Disorder, Heidi I. Stanish, Carol Curtin, Aviva Must, Sarah Phillips, Melissa C. T. Maslin, and Linda G. Bandini

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Physical Activity Enjoyment, Perceived Barriers, and Beliefs Among Adolescents With and Without Intellectual Disabilities, Heidi I. Stanish, Carol Curtin, Aviva Must, Sarah Phillips, Melissa C. T. Maslin, and Linda G. Bandini

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Emergency preparedness of families of children with developmental disabilities: what public health and safety emergency planners need to know, Susan Wolf-Fordham, Carol Curtin, Melissa C. T. Maslin, Linda G. Bandini, and Charles D. Hamad

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The SWI/SNF ATPases Are Required for Triple Negative Breast Cancer Cell Proliferation, Qiong Wu, Pasil A. Madany, Jacqueline Akech, Jason Dobson, Stephen Douthwright, Gillian Browne, Jennifer L. Colby, Georg E. Winter, James E. Bradner, Jitesh Pratap, Greenfield Sluder, Rohit Bhargava, Simion I. Chiosea, Andre J. Van Wijnen, Janet L. Stein, Gary S. Stein, Jane B. Lian, Jeffrey A. Nickerson, and Anthony N. Imbalzano

Publications from 2014

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Generalized Identity Matching to Sample after Multiple-Exemplar Training in Capuchin Monkeys, Ana Leda Brino, Olavo F. Galvao, Carlos R. F. Picanco, Romariz S. Barros, Carlos B. A. Souza, Paulo R. K. Goulart, and William J. McIlvane

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Systematic Review of Evidence of Interventions Addressing Disparities in Oral Health for Adults with Intellectual Disabilities: Year 2, Christine J. Clifford, Alexandra Bonardi, and Matthew Holder

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Lead levels in the breast milk of nursing Andean mothers living in a lead-contaminated environment, S. Allen Counter, Leo H. Buchanan, Fernando Ortega, Roberto Chiriboga, Rommy Correa, and Maria Angela Collaguaso

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Obesity in children with autism spectrum disorder, Carol Curtin, Mirjana Jojic, and Linda G. Bandini

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Blank-comparison matching-to-sample reveals a false positive symmetry test in a capuchin monkey, Ana Leda de Faria Brino, Rodolfo da Silva Campos, Olavo de Faria Galvao, and William J. McIlvane

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The potential influence of stimulus overselectivity in AAC: information from eye tracking and behavioral studies of attention with individuals with intellectual disabilities, William V. Dube and Krista M. Wilkinson

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Discovering Behavioral Intervention: A Parent’s Interactive Guide to ABA, Richard K. Fleming, Carol Curtin, Cheryl A. Gray, and Charles D. Hamad

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Rapid generation of balanced trial distributions for discrimination learning procedures: A technical note, Christophe J. Gerard, Harry A. MacKay, Brooks Thompson, and William J. McIlvane

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Controlling Relations in Stimulus Equivalence Classes of Preschool Children and Individuals with Down Syndrome, Priscila C. Grisante, Julio C. de Rose, and William J. McIlvane

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A comparison of food refusal related to characteristics of food in children with autism spectrum disorder and typically developing children, Kristie L. Hubbard, Sarah E. Anderson, Carol Curtin, Aviva Must, and Linda G. Bandini

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Nasal Morphology of the Chinese: Three-Dimensional Reference Values for Rhinoplasty, Yasas S. N. Jayaratne, Curtis K. Deutsch, and Roger A. Zwahlen

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Stereophotogrammetry-based facial depth measurements: a novel method for quantifying facial projection, Yasas S. N. Jayaratne, Curtis K. Deutsch, and Roger A. Zwahlen

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Emily Lauer and Courtney Dutra on Person-Centered Evaluation: Aging and Disability Services, Emily Lauer and Courtney Dutra

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Thematic Matching as Remedial Teaching for Symbolic Matching for Individuals with Autism Spectrum Disorder, Karen M. Lionello-DeNolf, Rachel Farber, B. Max Jones, and William V. Dube

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Colaboração Programática entre Brasil e EUA na Análise do Comportamento: Uma História do PRONEX (Programmatic Collaboration between Brazil and the United States in the Analysis of Behavior: The PRONEX Story), William J. McIlvane

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Rapid Teaching of Arbitrary Matching in Individuals with Intellectual Disabilities, Greg Morro, Harry A. MacKay, and Michael T. Carlin

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Obesity Prevention for Children with Developmental Disabilities, Aviva Must, Carol Curtin, Kristie Hubbard, Linmarie Sikich, James Bedford, and Linda G. Bandini

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Comparison of sedentary behaviors between children with autism spectrum disorders and typically developing children, Aviva Must, Sarah M. Phillips, Carol Curtin, Sarah E. Anderson, Melissa C. T. Maslin, Keith Lividini, and Linda G. Bandini

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Laser light scan analysis of the "anticonvulsant face", H. Ivan Orup Jr., Curtis K. Deutsch, and Lewis B. Holmes

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GRAIDs: a framework for closing the gap in the availability of health promotion programs and interventions for people with disabilities, James H. Rimmer, Kerri A. Vanderbom, Linda G. Bandini, Charles E. Drum, Karen Luken, Yolanda Suarez-Balcazar, and Ian D. Graham

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Modeling the effects of sensory reinforcers on behavioral persistence with alternative reinforcement, Mary M. Sweeney, Keira Moore, Timothy A. Shahan, William H. Ahearn, William V. Dube, and John A. Nevin

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Eye-tracking Measures Reveal How Changes in the Design of Aided AAC Displays Influence the Efficiency of Locating Symbols by School-Aged Children without Disabilities, Krista M. Wilkinson, Tara O'Neill, and William J. McIlvane

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Educating first responders to provide emergency services to individuals with disabilities, Susan B. Wolf-Fordham, Janet S. Twyman, and Charles D. Hamad

Publications from 2013

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Assistive Technology (AT): Opportunities for Interdisciplinary Research, Education, and Service Delivery, Alkim Akyurtlu, Deirdra Murphy, Alexandra Bonardi, Tom Mercier, and Craig Armiento

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Is body mass index a useful measure of excess body fatness in adolescents and young adults with Down syndrome?, Linda G. Bandini, R. K. Fleming, R. Scampini, James Gleason, and Aviva Must

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Comparison of physical activity between children with autism spectrum disorders and typically developing children, Linda G. Bandini, James Gleason, Carol Curtin, Keith Lividini, Sarah E. Anderson, Sharon A. Cermak, Melissa Maslin, and Aviva Must

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Accuracy of Dietary Reference Intakes for determining energy requirements in girls, Linda G. Bandini, Keith Lividini, Sarah M. Phillips, and Aviva Must

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Attention-deficit/hyperactivity disorder and obesity in US males and females, age 8-15 years: National Health and Nutrition Examination Survey 2001-2004, H. C. Michelle Byrd, Carol Curtin, and S E. Anderson

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Uncovering the evidence: Systematic review of interventions to reduce oral health disparities between adults with Intellectual Disability and the general population, Christine J. Clifford, Alexandra Bonardi, Nancy E. Harger, and Matthew Holder

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Parent support improves weight loss in adolescents and young adults with Down syndrome, Carol Curtin, Linda G. Bandini, Aviva Must, James Gleason, Keith Lividini, Sarah Phillips, Misha Eliasziw, Melissa C. T. Maslin, and Richard K. Fleming

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Quantitative assessment of craniofacial morphology in Johanson-Blizzard syndrome, Curtis K. Deutsch, Tania Hreczko, and Lewis B. Holmes

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Translational Research in Behavior Analysis, William V. Dube