Consumer Driven and Conducted Survey Research in Action

UMMS Affiliation

Department of Psychiatry

Publication Date


Document Type

Book Chapter


Community-Based Participatory Research; Data Collection


Health Services Research | Psychiatric and Mental Health | Psychiatry and Psychology | Public Health


People with disabilities are often seen as only the objects of survey research. Consumer Quality Initiatives, Inc. (CQI) is a consumer run research and evaluation organization that has attempted to turn this paradigm on its head. Below is a self-reported case study of CQI’s methodology, based on the principles of Community-based Participatory Action Research (“CPAR”).

Journal/Book/Conference Title

Systems and Psychosocial Advances Research Center Publications and Presentations


Citation: J. Delman (2007) Consumer Driven and Conducted Survey Research in Action. In Towards Best Practices for Surveying People with Disabilities. Volume 1 (T. Kroll D. Keer, P. Placek, J. Cyril and G. Hendershot eds.) Nova Publishers, Hauppauge NY, p. 71-87.

This chapter is also available via Google Books.

At the time of publication, Jonathan Delman was not yet affiliated with the University of Massachusetts Medical School.