UMMS Affiliation

Department of Psychiatry, Center for Mental Health Services Research; Center for Health Policy and Research

Publication Date


Document Type



Mentally Disabled Persons; Research; Rehabilitation; Professional-Patient Relations


Health Services Research | Mental and Social Health | Psychiatric and Mental Health | Psychiatry | Psychiatry and Psychology


Summary: This handbook provides guidelines for conducting participatory action research (PAR) with people who have psychiatric disabilities. PAR has gained prominence as a method for insuring the relevance and utility of research by involving the people the research is intended to impact in a co-learning process with investigators. The handbook supplies principles and strategies that can be modified to respond to different purposes and contexts of conducting PAR, i.e., program evaluation, experimental, and qualitative research. Although the examples and learnings are drawn from a particular PAR project with people who have psychiatric disabilities, the strategies described are applicable to PAR projects with any other population.


Danley, K., & Ellison, M. (1999). A handbook for participatory action researchers. Boston: Boston University Center for Psychiatric Rehabilitation. Link to book on publisher's website

Journal/Book/Conference Title

A handbook for participatory action researchers


At the time of publication, Marsha Langer Ellison was not yet affiliated with the University of Massachusetts Medical School.