Center for Health Policy and Research (CHPR) Publications

 

UMass Medical School's Center for Health Policy and Research (CHPR), a unit in the school's Commonwealth Medicine division, is dedicated to research, evaluation, and education initiatives that advance public health policy and outcomes worldwide. This collection showcases the journal articles and other publications and presentations written by faculty and researchers in the Center for Health Policy and Research.

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Publications from 2020

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Weight Management in Primary Care for Children With Autism: Expert Recommendations, Carol Curtin, Susan L. Hyman, Diane D. Boas, Sandra Hassink, Sarabeth Broder-Fingert, Lauren T. Ptomey, Meredith Dreyer Gillette, Richard K. Fleming, Aviva Must, and Linda G. Bandini

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Impact of Selective Eating on Social Domains Among Transition-Age Youth with Autism Spectrum Disorder: A Qualitative Study, Sara C. Folta, Carol Curtin, Aviva Must, Annie Pehrson, Katelyn Ryan, and Linda G. Bandini

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Developmental-Behavioral Pediatricians' Diagnosis and Coding of Overweight and Obesity in Children with Autism Spectrum Disorder, Morgan Walls, Carol Curtin, Sarah Phillips, Misha Eliasziw, Carissa Jackel, Aviva Must, Linda G. Bandini, and Sarabeth Broder-Fingert

Publications from 2019

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Food selectivity in a diverse sample of young children with and without intellectual disabilities, Linda G. Bandini, Carol Curtin, Misha Eliasziw, Sarah Phillips, Laura Jay, Melissa C. T. Maslin, and Aviva Must

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Nurses' attitudes and emotions toward caring for adults with intellectual disabilities: Results of a cross-sectional, correlational-predictive research study, Melissa L. Desroches, Kristen A. Sethares, Carol Curtin, and Joohyun Chung

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Addressing a Gap in Healthcare Access for Transition-Age Youth with Autism: A Pilot Educational Intervention for Family Nurse Practitioner Students, Dorothea Iannuzzi, Patricia Rissmiller, Susan M. Duty, Susan Feeney, Maura Sullivan, and Carol Curtin

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A 4-year randomized trial comparing three outreach interventions to promote screening mammograms, Roger Luckmann, Mary E. Costanza, Mary Jo White, Christine F. Frisard, Milagros C. Rosal, Susan Sama, Michelle R. Landry, and Robert Yood

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Does physical activity differ between youth with and without intellectual disabilities, Heidi I. Stanish, Carol Curtin, Aviva Must, Sarah Phillips, Melissa C. T. Maslin, and Linda G. Bandini

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Parental concern regarding obesity in children with autism spectrum disorder in the United States: National Survey of Children's Health 2016, David J. Tybor, Misha Eliasziw, Tanja V. E. Kral, Mary Segal, Nancy E. Sherwood, Linmarie Sikich, Heidi I. Stanish, Linda G. Bandini, Carol Curtin, and Aviva Must

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Blood Donation, Sexual Practices, and Self-Perceived Risk for HIV in the United States Among Young Adult Men Who Have Sex With Men, Anna E. Wentz, Roland C. Merchant, Melissa A. Clark, Tao Liu, Joshua G. Rosenberger, Jose A. Bauermeister, and Kenneth H. Mayer

Publications from 2018

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Discordance of voluntary HIV testing with HIV sexual risk-taking and self-perceived HIV infection risk among social media-using black, Hispanic, and white young-men-who-have-sex-with-men (YMSM), Kelsey A. Alexovitz, Roland C. Merchant, Melissa A. Clark, Tao Liu, Joshua G. Rosenberger, Jose Bauermeister, and Kenneth H. Mayer

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A Comparison of the Costs Associated with the Administration of Select High-cost Infused Medications in Three Sites of Care for a State Medicaid Population, Sage Bagwell, Pavel Lavitas, Thomas C. Pomfret, Bonnie C. Greenwood, Nicole M. Trask, Stephanie Tran, Nancy L. Schiff, Tasmina Hydery, Patricia Leto, Mylissa K. Price, Caroline J. Alper, Kimberly J. Lenz, and Paul L. Jeffrey

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Differences in Caregiving Outcomes and Experiences by Sexual Orientation and Gender Identity, Ulrike Boehmer, Melissa A. Clark, Timothy C. Heeren, Elizabeth Ann. Showalter, and Lisa Fredman

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The Role of Clinical Guidelines in a Managed Long Term Services & Supports Framework, Jessica Carpenter and Jill Morrow-Gorton

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An Evaluation of a Multidisciplinary Pediatric Behavioral Health Medication Initiative Workgroup's Interventions on Medication Prescribing in a Population of Medicaid Patients, Ashley N. Chiara, Neha Kashalikar, Thomas C. Pomfret, Kimberly J. Lenz, Donna M. Faber, Joel Goldstein, Karen M. Clements, Michael Angelini, Patricia Leto, and Paul L. Jeffrey

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Sensory Sensitivity and Food Selectivity in Children with Autism Spectrum Disorder, Liem T. Chistol, Linda G. Bandini, Aviva Must, Sarah Phillips, Sharon A. Cermak, and Carol Curtin

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Pathways to Friendship - Building Friendships One Person at a Time: An innovative two-year project to expand and improve the inclusion of people with IDD, Christine J. Clifford and Jim Ross

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The Right Care, The Right Place, The Right Time: Emergency Department Avoidance Across the U.S., Jay Flanagan and Michael Steinkrauss

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Accounting for Geographic Variation in Social Security Disability Program Participation, John Gettens, Pei-Pei Lei, and Alexis D. Henry

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Objection! That’s a Leading Survey Question, Carla Hillerns

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Association between Practice Participation in a Pediatric-focused Medical Home Learning Collaborative and Reduction of Preventable Emergency Department Visits by Publicly-insured Children in Massachusetts, Paul Kirby, Anna Christensen, Louise Bannister, and Valerie Konar

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Effectiveness of Ledipasvir/Sofosbuvir and Predictors of Treatment Failure in Members with Hepatitis C Genotype 1 Infection: A Retrospective Cohort Study in a Medicaid Population, George Kouris, Tasmina Hydery, Bonnie C. Greenwood, Pavel Lavitas, Mylissa K. Price, Karen M. Clements, Caroline J. Alper, Kimberly J. Lenz, and Paul L. Jeffrey

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The Effectiveness of Internet- and Field-Based Methods to Recruit Young Adults Who Use Prescription Opioids Nonmedically, Brandon D. Marshall L, Traci C. Green, Beth Elston, Jesse L. Yedinak, Scott E. Hadland, and Melissa A. Clark

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Hiring workers with disabilities makes sense whether the job market is hot or cold, Kathleen A. Petkauskos

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The Sibling Support Demonstration Project: A Pilot Study Assessing Feasibility, Preliminary Effectiveness, and Participant Satisfaction, Emily Rubin, Louis Ostrowsky, Elizabeth Janopaul-Naylor, Priya Sehgal, Shireen Cama, Emilie Tanski, and Carol Curtin

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Impact of a Pilot Outreach Program upon Provider Awareness and Prescribing of a Concerning Opioid Combination Regimen, Briana Santaniello, Thomas C. Pomfret, Mark A. Tesell, Nicole M. Trask, Caroline J. Alper, Karen M. Clements, Vincent Palumbo, Kimberly Lenz, and Paul L. Jeffrey

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Impact of Lumacaftor/Ivacaftor on Pulmonary Exacerbation Rates in Members with Cystic Fibrosis in a Medicaid Population, Mark A. Tesell, Karen Stevens, Bonnie C. Greenwood, Caroline J. Alper, Kimberly J. Lenz, and Paul L. Jeffrey

Publications from 2017

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Changes in Food Selectivity in Children with Autism Spectrum Disorder, Linda G. Bandini, Carol Curtin, Sarah Phillips, Sarah E. Anderson, Melissa C. T. Maslin, and Aviva Must

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A Structured Approach Using the Systematic Review Data Repository (SRDR): Building the Evidence for Oral Health Interventions in the Population With Intellectual and Developmental Disability, Alexandra Bonardi, Christine J Clifford, and Nira Hadar

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Massachusetts Innovative Action to Support those Aging with an Intellectual or Developmental Disability (IDD), Laney Bruner-Canhoto, Sharon Oxx, Christine J. Clifford, and Emily Lauer

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Approaching Document Review in a Systematic Way, Linda M. Cabral

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Evaluating the Impact of Interventions by a Multidisciplinary Pediatric Behavioral Health Medication Initiative Workgroup on Medication Prescribing Trends in a Medicaid Population, Ashley N. Camilo, Neha Kashalikar, Thomas C. Pomfret, Donna M. Faber, Kimberly J. Lenz, Joel Goldstein, Karen M. Clements, Michael Angelini, Patricia Leto, and Paul L. Jeffrey

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Automatic Text Simplification for People with Intellectual Disabilities, Ping Chen, John Rochford, David N. Kennedy, Soussan Djamasbi, Peter Fay, and Will Scott

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Leveraging EHRs and HIEs for Hepatitis C Surveillance, Prevention and Management:, Michael Chin

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Integrating Measures of Social Determinants of Health Into Health Care Encounters: Opportunities and Challenges, Melissa A. Clark and Deborah Gurewich

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Testing U.S. State-Based Training Models to Meet Health Workforce Needs in Long-Term Care, Jennifer Craft Morgan, Nadine Edris, Clare C. Luz, Daniel P. Ochylski, Anita Stineman, Leanne Winchester, and Susan A. Chapman

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The healthy weight research network: a research agenda to promote healthy weight among youth with autism spectrum disorder and other developmental disabilities, Carol Curtin, Aviva Must, Sarah Phillips, and Linda G. Bandini

Associations Between Physical Pain, Pain Management, and Frequency of Nonmedical Prescription Opioid Use Among Young Adults: A Sex-specific Analysis, Tristan I. Evans, Elliott J. Liebling, Traci C. Green, Scott E. Hadland, Melissa A. Clark, and Brandon D. L. Marshall

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Prescription contraception use and adherence by women with substance use disorders, Gillian J. Griffith, Tara Kumaraswami, Stavroula A. Chrysanthopoulou, Kristin M. Mattocks, and Robin E. Clark

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Massachusetts Medicaid members that smoked in 2008: Characteristics associated with smoking status in 2014, Alexis D. Henry, John Gettens, Judith A. Savageau, Doris Cullen, and Anna Landau

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Secrets for Effective Survey Invitations, Carla Hillerns and Pei-Pei Lei

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Evaluation of Progesterone Utilization and Birth Outcomes in a State Medicaid Plan, Tasmina Hydery, Mylissa K. Price, Bonnie C. Greenwood, Mito Takeshita, Parag S. Kunte, Rose P. Mauro, Kimberly J. Lenz, and Paul L. Jeffrey

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Evaluation of Progesterone Agent Utilization and Birth Outcomes in a State Medicaid Plan, Tasmina Hydery, Mylissa K. Price, Bonnie C. Greenwood, Mito Takeshita, Rose Mauro, Parag Kunte, Kimberly J. Lenz, and Paul L. Jeffrey

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Effectiveness of Ledipasvir/Sofosbuvir and Predictors of Treatment Failure in Members with Hepatitis C Genotype 1: A Retrospective Cohort Study in a Medicaid Population, George Kouris, Tasmina Hydery, Bonnie C. Greenwood, Pavel Lavitas, Caroline J. Alper, Mylissa K. Price, Karen M. Clements, Kimberly J. Lenz, and Paul L. Jeffrey

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Starting at the End: Measuring Learning Using Retrospective Pre-Post Evaluations, Debi Lang and Judith A. Savageau

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Is R right for you? If yes…, Pei-Pei Lei

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Substance Use Disorder Privacy Law Limits Both Payers, Prescribers, Kimberly J. Lenz and Tyson Thompson

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NASTAD Health Systems Data Technical Resource: Toolkit for Querying Claim Databases for HCV Testing and Treatment, Wen-Chieh Lin, Amy Leary, Philip Bolduc, Abigail R. Averbach, Karen M. Clements, and Bonnie C. Greenwood

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State Medicaid Reimbursement for Medications for Chronic Hepatitis C Infection from 2012 through 2015, Christine Lu, Fang Zhang, Nicole Golonski, Caitlin Lupton, Paul L. Jeffrey, and Anita Wagner

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Potential Healthcare Insurance and Provider Barriers to Pre-Exposure Prophylaxis Utilization Among Young Men Who Have Sex with Men, Sarah J. Marks, Roland C. Merchant, Melissa A. Clark, Tao Liu, Joshua G. Rosenberger, Jose Bauermeister, and Kenneth H. Mayer

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Providing Pediatric Asthma Home Visits by Community Workers -- Lessons Learned, David McCarthy

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Comparison of Home-Based Oral Fluid Rapid HIV Self-Testing Versus Mail-in Blood Sample Collection or Medical/Community HIV Testing By Young Adult Black, Hispanic, and White MSM: Results from a Randomized Trial, Roland C. Merchant, Melissa A. Clark, Tao Liu, Justin Romanoff, Joshua G. Rosenberger, Jose Bauermeister, and Kenneth H. Mayer

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Variations in Recruitment Yield and Characteristics of Participants Recruited Across Diverse Internet Platforms in an HIV Testing Study of Young Adult Men-Who-Have-Sex-With-Men (YMSM), Roland C. Merchant, Justin Romanoff, Melissa A. Clark, Tao Liu, Joshua G. Rosenberger, Jose Bauermeister, and Kenneth H. Mayer

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The Effect of Age on the Prevalence of Obesity among US Youth with Autism Spectrum Disorder, Aviva Must, Misha Eliasziw, Sarah M. Phillips, Carol Curtin, Tanja V. E. Kral, Mary Segal, Nancy E. Sherwood, Linmarie Sikich, Heidi I. Stanish, and Linda G. Bandini

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Health System Advance Care Planning Culture Change for High-Risk Patients: The Promise and Challenges of Engaging Providers, Patients, and Families in Systematic Advance Care Planning, Jennifer Reidy, Jennifer Halvorson, Suzana Makowski, Delila Katz, Barbara Weinstein, Christine McCluskey, Alex Doering, Kathryn DeCarli, and Jennifer Tjia

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Body mass index (BMI), postoperative appearance satisfaction, and sexual function in breast cancer survivorship, K. E. Rojas, N. Matthews, C. Raker, Melissa A. Clark, M. Onstad, A. Stuckey, and J. Gass

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The impact of mastectomy type on the Female Sexual Function Index (FSFI), satisfaction with appearance, and the reconstructed breast's role in intimacy, K. Rojas, M. Onstad, C. Raker, Melissa A. Clark, A. Stuckey, and J. Gass

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Data Analysis Basics – Part I, Judith A. Savageau

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Data Analysis Basics – Part II, Judith A. Savageau

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Counting and Computing with Microsoft Excel, Laura A. Sefton

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Creating Solid Interview Guides, Laura A. Sefton and Linda M. Cabral

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Task Condition and Pupillometry, Mina Shojaeizadeh, Worcester Polytechnic Institute, John Rochford, and Ping Chen

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Physical Activity Levels, Frequency, and Type Among Adolescents with and Without Autism Spectrum Disorder, Heidi I. Stanish, Carol Curtin, Aviva Must, Sarah Phillips, Melissa C. T. Maslin, and Linda G. Bandini

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The Effect of a Federal Controlled Substance Act Schedule Change on Hydrocodone Combination Products Claims in a Medicaid Population, Stephanie Tran, Pavel Lavitas, Karen Stevens, Bonnie C. Greenwood, Karen M. Clements, Caroline J. Alper, Kimberly J. Lenz, Mylissa K. Price, Tasmina Hydery, Jennifer L. Arnold, Mito Takeshita, Rachel Bacon, Justin P. Peristere, and Paul L. Jeffrey

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A Novel Weight-Loss Tool Designed for Adolescents with Intellectual Disabilities, Maresa Weems, Laura Truex, Renee Scampini, Richard K. Fleming, Carol Curtin, and Linda G. Bandini

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Determination of Massachusetts’ respite policies and the potential impact of unpaid family care giver support on home and community based services, Leanne Winchester, Kate Russell, and Kelly Love

Publications from 2016

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Quality Improvement (QI) in Evaluation: Ask Why Again and Again and Again, Ruth Aboagye, Sai Cherala, Pam Senesac, and Joan Johnston

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Quality Improvement (QI) in Evaluation: Anatomy of a Fishbone (Diagram), Ruth Aboagye, Pam Senesac, Anita Morris, Joan Johnston, and Sai Cherala

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Making Your Webinar Accessible, Angie Aguirre

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The Role of Managed Care Pharmacy in Improving Access to Naloxone: Findings from the AMCP Addiction Treatment Advisory Group, AMCP Addiction Treatment Advisory Group and Kimberly J. Lenz

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Lessons From a Care Management Pilot Program for People With Acquired Brain Injury, Laney Bruner-Canhoto, Judith A. Savageau, Deborah Croucher, and Kathryn Bradley

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Evaluating the Full Potential of Your Staff, Sherry Campanelli and Laura Newhall

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Linking Health Across the Systems, Sai Cherala and Tracy Kennedy

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Massachusetts Residents Without Health Insurance Coverage: Understanding Those at Risk of Long-Term Uninsurance, Michael Chin and Audrey Gasteier

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Coordinating Care for Patients with Alcohol or Drug Use Disorders: Effective Practices and Common Barriers in Three Centers, Robin E. Clark, Deborah Gurewich, Linda M. Cabral, Gillian J. Griffith, and Kathy Muhr

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Access to New Medications for Hepatitis C for Medicaid Members: A Retrospective Cohort Study, Karen M. Clements, Robin E. Clark, Pavel Lavitas, Parag Kunte, Camilla S. Graham, Elizabeth O'Connell, Kimberly J. Lenz, and Paul Jeffrey

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Pregnancy Characteristics and Outcomes among Women at Risk for Disability from Health Conditions Identified in Medical Claims, Karen M. Clements, Monika Mitra, Jianying Zhang, and Lisa I. Iezzoni

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Expanding Horizons: A Pilot Mentoring Program Linking College/Graduate Students and Teens With ASD, Carol Curtin, Kristin Humphrey, Kaela Vronsky, Kathryn Mattern, Susan Nicastro, and Ellen C. Perrin

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Development of an Assessment to Examine Training of the Hospice Primary Caregiver, Eleanor L. DiBiasio, Joan M. Teno, Melissa A. Clark, Carol Spence, and David Casarett

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Text Simplification and Generation Y: An Eye Tracking Study, Soussan Djamasbi, Ping Chen, Mina Shojaeizadeh, and John Rochford

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Text Simplification and User Experience, Soussan Djamasbi, John Rochford, Abigail DaBoll-Lavoie, Tyler Greff, Jennifer Lally, and Kayla McAvoy

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Moving Beyond Google Translate: What Massachusetts Families from Diverse Cultures Need for Effective Autism Services and Supports, Courtney Dutra, Elaine Gabovitch, Emily Lauer, Rosalie Jiang, and Julie Whyte

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Including Language Access into Medicaid ACO Design, Rachel Gershon, Lisa Morris, and Warren J. Ferguson

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2013-2015 Connecting Consumers with Care Grant Area Evaluation, Deborah Gurewich, Linda M. Cabral, and Laura A. Sefton

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The Remaining Uninsured in Massachusetts: Experiences of Individuals Living without Health Insurance Coverage, Deborah Gurewich, Michael Chin, Kathy Muhr, Heather Posner, Jennifer Rosinski, Elise LaFlamme, and Audrey Gasteier

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Policy Opportunities for Promoting Employment for People with Psychiatric Disabilities, Alexis D. Henry, Jennie Fishman, Alison Barkoff, Jennifer Mathis, and Bethany J. Lilly

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Using PDSAs to Optimize Surgical Screening, Wesley Klein, Joan Johnston, and Anita Morris

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The Perioperative Surgical Home: A New Paradigm in a Surgical Episode of Care, Valerie Konar, Judith Steinberg, Shubjeet Kaur, Mitchell H. Sokoloff, and Sai Cherala

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Influential Forces in Breast Cancer Surgical Decision Making and the Impact on Body Image and Sexual Function, Rebecca M. Kwait, Sarah Pesek, Michaela Onstad, David Edmonson, Melissa A. Clark, Christina Raker, Ashley Stuckey, and Jennifer Gass

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The Importance of Learning Objectives in Program Design and Evaluation, Debi Lang

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Using Plain Language in Evaluation, Emily Lauer and Courtney Dutra

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Overview of Comprehensive Hepatitis C Virus Medication Management in a State Medicaid Program, Pavel Lavitas, Mark A. Tesell, Tasmina Hydery, Bonnie C. Greenwood, Mylissa K. Price, Kimberly J. Lenz, and Paul L. Jeffrey

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The Beauty of Banner Tables, Pei-Pei Lei and Carla Hillerns

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Access to substance use treatment among young adults who use prescription opioids non-medically, Elliott J. Liebling, Jesse L. Yedinak, Traci C. Green, Scott E. Hadland, Melissa A. Clark, and Brandon D.L. Marshall

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Prevalence and Characteristics of Sexual Violence Against Men with Disabilities, Monika Mitra, Vera E. Mouradian, Michael H. Fox, and Carter Pratt

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Stories from the Frontline: Patient-Centered Medical Home Care Transitions, Anita Morris, Joan Johnston, Sai Cherala, Ruth Aboagye, Pam Senesac, Judith L. Steinberg, and Jaime Vallejos

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Improving Population Healthcare Through Data Analytics, Visualization, and Reporting Tools, Rick Perro

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Southern New England Practice Transformation Network: Thinking Outside the Box Solved Our Enrollment Challenges, David Polakoff

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Cancer of the uterus and treatment of stress incontinence: a pilot study, Katina Robison, Elizabeth Lokich, Sonali Raman, Christine Luis, Christina Raker, Melissa A. Clark, and Kyle Wohlrab

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Recruitment and Retention of Community Health Center Primary Care Physicians post MA Health Care Reform: 2008 vs. 2013 Physician Surveys, Judith A. Savageau, Linda J. Cragin, Warren J. Ferguson, Laura A. Sefton, and Joan Pernice