Title

Reframing the influence of the Health Insurance Portability and Accountability Act on research

Publication Date

2012-03-01

UMMS Affiliation

Graduate School of Nursing; Commonwealth Medicine, Center for Health Care Financing

Document Type

Article

Disciplines

Health and Medical Administration | Health Policy | Health Services Research | Insurance | Science and Technology Policy

Abstract

The purpose of this article is to review the Health Insurance Portability and Accountability Act (HIPAA), the Privacy Rule, the Security Rule, and common issues encountered by researchers related to these federal privacy and security requirements. This article discusses the misconceptions that researchers may hold about HIPAA, including the process for reviewing protected health information when preparing to conduct a study, potential constraint on participant recruitment, and application of HIPAA to a researcher's clinical population. We also present ways to reframe the negative connotations associated with this regulation and provide tips for researchers about how to work with HIPAA when planning and conducting a study and reporting on study findings. Finally, we suggest that the principles of HIPAA be considered when conducting studies in international settings.

Keywords

Health Insurance Portability and Accountability Act, HIPAA, research

DOI of Published Version

10.1378/chest.11-2182

Source

Chest. 2012 Mar;141(3):782-786. doi: 10.1378/chest.11-2182. Link to article on publisher's site

Journal/Book/Conference Title

Chest

Related Resources

Link to Article in PubMed

PubMed ID

22396563

Link to Full Text

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