Graduate School of Nursing Dissertations
ORCID
0000-0003-3718-7545
Publication Date
2018-12
Document Type
Dissertation, Doctoral
Department
Graduate School of Nursing
Dissertation Committee Chair
Nancy Morris, PhD
Keywords
Self-management, Cerebral Palsy, Transition Readiness, Health Literacy, Transtheoretical Model
Subject Categories
Behavior and Behavior Mechanisms | Health Psychology | Information Literacy | Nervous System Diseases | Nursing | Pediatric Nursing
Abstract
Purpose: Assess the effectiveness of an online intervention to encourage self-management in adolescents with cerebral palsy (CP).
Specific Aims: (a) assess effectiveness of an online intervention to promote readiness for self-management in adolescents with CP, (b) describe health literacy and associations with readiness to assume self-management, and (c) evaluate adolescents’ exposure to the online intervention.
Hypotheses: (a) intervention subjects would demonstrate improvement in self-management, and (b) subjects with higher health literacy would demonstrate higher self-management capabilities.
Framework: Transtheoretical Model of Health Behavior Change
Design: Randomized control trial, performed in a multidisciplinary CP clinic at a university based children’s hospital. Instruments used: (a) Transition Readiness Assessment Questionnaire (TRAQ) and (b) the Health Literacy Skills Instrument-SF (HLSI). Due to low engagement, the study terminated early. Intervention subjects were interviewed to assess their limited engagement.
Results: Seventy-five percent of subjects demonstrated inadequate HL. Mean baseline TRAQ score (n=24) was 2.71 (SE = .24). Positive associations were found between TRAQ and age (.47, p = .00) and TRAQ and HL (.48, p = .00).
Conclusion: Failure to engage with the intervention appeared to be related to: (a) low HL, (b) low TRAQ scores (indicating subjects in contemplation stage) (c) inconsistency between subjects’ preference for learning and delivery of information, and (d) low motivation for self directed learning. Online interventions should be easy to use and include learning preferences. Lessons learned will inform future development of interventions for this population.
DOI Link
Rights and Permissions
Copyright © 2018 Thompson
Creative Commons License
This work is licensed under a Creative Commons Attribution 4.0 License.
Repository Citation
Thompson, CT. Reluctance of Adolescents with Cerebral Palsy to Participate in an Online Intervention on Self-management: Lessons Learned from a Randomized Control Trial. (2018). University of Massachusetts Medical School. Graduate School of Nursing Dissertations. Paper 56. DOI: 10.13028/nhrh-n324. https://escholarship.umassmed.edu/gsn_diss/56
Included in
Behavior and Behavior Mechanisms Commons, Health Psychology Commons, Information Literacy Commons, Nervous System Diseases Commons, Pediatric Nursing Commons