Department of Population and Quantitative Health Sciences; School of Medicine; Graduate School of Biomedical Sciences
Community Health and Preventive Medicine | Health Services Administration | Health Services Research | Neoplasms
BACKGROUND: Physical activity rates in cancer survivors continue to be low despite the known benefits and availability of evidence-based programs. LIVESTRONG at the Y is a national community-based physical activity program offered cost-free to cancer survivors, though is underutilized. We explored perceptions and experiences of staff and participating survivors to better understand program awareness, referrals and participation.
METHODS: LIVESTRONG at the Y program staff [directors (n = 16), instructors (n = 4)] and survivors (n = 8) from 8 United States YMCAs took part in 30-min semi-structured phone interviews between March-May 2019. Interviews were digitally recorded, transcribed, and evaluated using a thematic analysis approach.
RESULTS: Program staff themes included: 1) Program awareness should be further developed for both the general public and medical providers; 2) Strong relationships with medical providers increased program referrals; 3) Electronic referral systems between providers and LIVESTRONG would help to streamline the referral process; and 4) Bi-directional communication between program staff and medical providers is key to providing patient progress updates. Survivor themes included: 1) Survivors trust their medical team and the information they provide about physical activity; 2) Providers need to incorporate an action plan and referrals for survivors to be active once treatments are completed; and 3) Personal experiences of those who participated in LIVESTRONG resonate with survivors and increase participation.
CONCLUSIONS: LIVESTRONG staff reported the need for an integrated electronic referral system and bi-directional communication with providers about participant progress. Survivors want physical activity education, electronic referrals and follow-up from their healthcare team, coupled with peer support from other survivors. Cancer care provider knowledge and electronic referrals during and after treatment may expedite and increase participation in this community-based program.
Cancer, Community, Physical activity, Providers, Referrals
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DOI of Published Version
Faro JM, Mattocks KM, Mourao D, Nagawa CS, Lemon SC, Wang B, Cutrona SL, Sadasivam RS. Experiences and perceptions of referrals to a community-based physical activity program for cancer survivors: a qualitative exploration. BMC Health Serv Res. 2021 Apr 17;21(1):358. doi: 10.1186/s12913-021-06365-9. PMID: 33865384; PMCID: PMC8052851. Link to article on publisher's site
BMC health services research
Faro JM, Mattocks KM, Mourao D, Nagawa CS, Lemon SC, Wang B, Cutrona SL, Sadasivam RS. (2021). Experiences and perceptions of referrals to a community-based physical activity program for cancer survivors: a qualitative exploration. University of Massachusetts Medical School Faculty Publications. https://doi.org/10.1186/s12913-021-06365-9. Retrieved from https://escholarship.umassmed.edu/faculty_pubs/1995
Creative Commons License
This work is licensed under a Creative Commons Attribution 4.0 License.