Department of Pediatrics
Analytical, Diagnostic and Therapeutic Techniques and Equipment | Congenital, Hereditary, and Neonatal Diseases and Abnormalities | Health Services Administration | Infectious Disease | Musculoskeletal Diseases | Nervous System Diseases | Telemedicine | Virus Diseases
The corona virus disease 2019 (COVID-19) pandemic has resulted in the reorganization of healthcare settings affecting clinical care delivery to patients with Duchenne and Becker muscular dystrophy (DBMD) as well as other inherited muscular dystrophies. The magnitude of the impact of this public health emergency on the care of patients with DBMD is unclear as they are suspected of having an increased risk for severe manifestations of COVID-19. In this paper, the authors discuss their consensus recommendations pertaining to care of these patients during the pandemic. We address issues surrounding corticosteroid and exon skipping treatments, cardiac medications, hydroxychloroquine use, emergency/respiratory care, rehabilitation management, and the conduct of clinical trials. We highlight the importance of collaborative treatment decisions between the patient, family, and health care provider, considering any geographic or institution-specific policies and precautions for COVID-19. We advocate for continuing multidisciplinary care for these patients using telehealth.
COVID19, COVID-19, pandemic, muscular dystrophy, BMD, DMD, consensus, recommendations
Rights and Permissions
© 2020. This is a PDF file of an accepted manuscript that has been accepted for publication and posted with a 12-month embargo as allowed by the publisher’s author rights policy at https://authorservices.wiley.com/author-resources/Journal-Authors/licensing/self-archiving.html. This article may be used for non-commercial purposes in accordance with Wiley Terms and Conditions for Use of Self-Archived Versions.
DOI of Published Version
Veerapandiyan A, Wagner KR, Apkon S, McDonald CM, Mathews KD, Parsons JA, Wong BL, Eichinger K, Shieh PB, Butterfield RJ, Rao VK, Smith EC, Proud CM, Connolly AM, Ciafaloni E. The care of patients with Duchenne, Becker and other muscular dystrophies in the COVID-19 pandemic. Muscle Nerve. 2020 Apr 24. doi: 10.1002/mus.26902. Epub ahead of print. PMID: 32329920. Link to article on publisher's site
Muscle and nerve
Veerapandiyan A, Wagner KR, Apkon S, McDonald CM, Mathews KD, Parsons JA, Wong BL, Eichinger K, Shieh PB, Butterfield RJ, Rao VK, Smith EC, Proud CM, Connolly AM, Ciafaloni E. (2020). The care of patients with Duchenne, Becker and other muscular dystrophies in the COVID-19 pandemic. Coronavirus COVID-19 Publications by UMMS Authors. https://doi.org/10.1002/mus.26902. Retrieved from https://escholarship.umassmed.edu/covid19/18
Available for download on Saturday, April 24, 2021
Analytical, Diagnostic and Therapeutic Techniques and Equipment Commons, Congenital, Hereditary, and Neonatal Diseases and Abnormalities Commons, Health Services Administration Commons, Infectious Disease Commons, Musculoskeletal Diseases Commons, Nervous System Diseases Commons, Telemedicine Commons, Virus Diseases Commons