Promoting adherence and retention to clinical trials in special populations: a women's health initiative workshop
Department of Medicine, Division of Preventive and Behavioral Medicine; Department of Medicine, Division of Geriatric Medicine
Age Distribution; Aged; Cultural Diversity; Female; Humans; Middle Aged; Minority Groups; *Randomized Controlled Trials as Topic; Social Class; *Women's Health
Behavioral Disciplines and Activities | Behavior and Behavior Mechanisms | Community Health and Preventive Medicine | Preventive Medicine
This paper describes a Women's Health Initiative workshop on promoting adherence and retention in randomized clinical trials among ethnic minority women, participants of lower socioeconomic status, and older women. Workshop objectives were: (1) to increase knowledge of demographic and cultural characteristics of diverse groups, (2) to increase awareness of how diversity can affect interactions in clinical research, (3) to explore how research staff behavior can influence adherence and retention, and (4) to increase knowledge of strategies to enhance adherence and retention in special populations. The workshop emphasized the importance of understanding beliefs, values, and experiences that are common in diverse groups of individuals, while at the same time recognizing and respecting individual differences that result from varying life circumstances and experiences. We discuss strategies to increase cultural competence, reduce stereotypes and discrimination, and create a culturally relevant and sensitive research environment.
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Citation: Control Clin Trials. 2001 Jun;22(3):279-89.
Wilcox, Sara; Shumaker, Sally A.; Bowen, Deborah J.; Naughton, Michelle J.; Rosal, Milagros C.; Ludlam, Shari E.; Dugan, Elizabeth; Hunt, Julie R.; and Stevens, Stephanie, "Promoting adherence and retention to clinical trials in special populations: a women's health initiative workshop" (2001). Preventive and Behavioral Medicine Publications and Presentations. 81.