Title

Newborn Screening Expansion: Massachusetts Research Models Encompass Public Health Service Responsibility

UMMS Affiliation

Department of Pediatrics; New England Newborn Screening Program

Date

2007

Document Type

Book Chapter

Medical Subject Headings

Neonatal Screening; Massachusetts

Disciplines

Genetics and Genomics | Medical Genetics | Pediatrics

Abstract

Introduction: Massachusetts has been at the forefront of incorporating a formal research component into its newborn screening programme to advance our understanding of disease, its prevention and the related necessary services available to populations. This chapter advocates that research be recognized as an integral component of any newborn screening programme and that the infrastructure required within the programme to support such research be promoted as a provision of public health responsibility.

Citation: Comeau AM. Newborn Screening Expansion: Massachusetts Research Models Encompass Public Health Service Responsibility. Knoppers, Martha Maria (Ed), in Genomics and Public Health: Socio-Ethical and Legal Perspectives. Leiden: Martinus Nijhoff International (Brill), 2007: pp 45-53.

A preview of this chapter is available via Google Books.