ALS C.A.R.E. is a voluntary, physician-directed program to improve outcomes for patients diagnosed with amyotrophic lateral sclerosis. The Center for Outcomes Research at the University of Massachusetts Medical School (UMMS) has been designated as the data coordinating center for this project. This collection showcases publications about the ALS C.A.R.E. project and project research.

Follow

Publications from 2009

Link

The Amyotrophic Lateral Sclerosis Patient Care Database, Robert G. Miller, Stacey M. Champion, Dallas A. Forshew, and Frederick A. Anderson Jr.

Publications from 2006

Link

Factors correlated with NPPV use in ALS, Carlayne E. Jackson, Steven Lovitt, Neelam Gowda, Frederick A. Anderson Jr., and Robert G. Miller

Publications from 2004

Link

Changes in the management of ALS since the publication of the AAN ALS practice parameter 1999, W. G. Bradley, Frederick A. Anderson Jr., Neelam Gowda, and Robert G. Miller

Link

Use of noninvasive ventilation in patients with amyotrophic lateral sclerosis, Noah Lechtzin, Charles M. Wiener, Lora Clawson, Matthew C. Davidson, Frederick A. Anderson Jr., Neelam Gowda, and Gregory B. Diette

Publications from 2003

Link

Percutaneous endoscopic gastrostomy (PEG) in patients with ALS and bulbar dysfunction, H. Mitsumoto, Matthew C. Davidson, D. Moore, N. Gad, M. Brandis, S. Ringel, J. Rosenfeld, J. M. Shefner, M. J. Strong, R. Sufit, and Frederick A. Anderson Jr.

Publications from 2001

Link

Current management of ALS: comparison of the ALS CARE Database and the AAN Practice Parameter. The American Academy of Neurology, W. G. Bradley, Frederick A. Anderson Jr., M. Bromberg, L. Gutmann, Y. Harati, M. Ross, and Robert G. Miller

Link

Assessing health status quality of life in ALS: comparison of the SIP/ALS-19 with the ALS Functional Rating Scale and the Short Form-12 Health Survey. ALS C.A.R.E. Study Group. Clinical Assessement, Research, and Education, M. B. Bromberg, Frederick A. Anderson Jr., Matthew C. Davidson, and Robert G. Miller

Link

The ALS Patient Care Database: insights into end-of-life care in ALS, R. N. Mandler, Frederick A. Anderson Jr., Robert G. Miller, Lora Clawson, M. Cudkowicz, and M. Del Bene

Publications from 2000

Link

Risk factors in the early diagnosis of ALS: North American epidemiological studies. ALS CARE Study Group, B. R. Brooks and ALS CARE Study Group

Link

The ALS patient care database: goals, design, and early results. ALS C.A.R.E. Study Group, Robert G. Miller, Frederick A. Anderson Jr., W. G. Bradley, B. R. Brooks, H. Mitsumoto, T. L. Munsat, and S. P. Ringel

Publications from 1996

Link

ALS care: a resource for measuring and improving ALS outcomes, Frederick A. Anderson Jr. and Robert G. Miller